Sep 14, 2006 Lisa Carter
This has been an incredibly difficult journey for you. Your strength and love shines through in your story, all credit to you, my heart goes out to you, your family and your very special little chap.
Sep 23, 2006 Gonzalo&Geraldine
Our Agustin is now 1 and 3 months old and he too is kabuki. We live in chile on the other side of the ocean, an ocean of pain , hope and joy. Well reading tou storie reminded us every detail in Agustin's calvary, I cried, recognising our own pain in others heart. Hopefully Augustin is now much better.::With our heart.::Gonzalo+Geraldine
Oct 6, 2006 Bonnie
I have a 9 yo son Ashton who has kabuki syndrome. Sites like this give Mum's like me alot more insight on the every day goings on in a Kabuki kids life.
Oct 29, 2006 melissa pargeter
great reading, gives us all alot of support
Oct 31, 2006 Stacey
Family day story is really nice. Thankyou for your kind words. It really was a great day for us all.::The site looks great, nice work to you both.::Stacey
Nov 7, 2006 Heather Hobson
Hi there! I met you at the Family Day 2006. Our son is little Luke, the 18 month old blondie in the photo. Your story made me cry and cry as I read it and relived some of my own feelings as we've been on a similarly difficult journey with Luke, since I was 18 weeks pregnant. I will try to write out our story soon and send it to you. Thank you for putting this website together. God bless you all!
Nov 12, 2006 Ron and Paula Shook
It's wonderful to share w/all of you from the U.S. and thank God for all the research that helps children like our precious grandson Luke Hopson,with Kabuki S.
Nov 19, 2006 lynda vaughan
Have just found your site. Have an 11yr old girl just diagnosed after searching for so long. Different symptons to your boy. Will write my story to you soon.
Nov 21, 2006 Stacey
The whole site looks great guys. Well done from the McKiernans
Nov 21, 2006 jen holdsworth
you have done a great job!!! well done
Nov 22, 2006 at 15:31:02 John and Helen Hobson
We are proud to be Luke's grandparents. Great web site. Thank you
Nov 22, 2006 Jennifer Graffagnino
The site is beautiful, the colors and layout are perfect. Well done. Jennifer, Mommy to Matthew and Ryan (brothers with KS) USA
Nov 24, 2006 Kim Stanton
Hi, I have a 10.5 year old with Kabuki and a 2.5year old without. I am apart of the world kabuki site and another Australian one, thanks for sharing your story with us - Huggles Kim Roger Jake and Ema
Nov 25, 2006 Stacey McKiernan
I have just read the sibling page. What a beautiful big sister Zachary has. The story really brought it home just how my other kids must feel. Thankyou
Nov 26, 2006 Krista Tearne
Hi from Victoria BC Canada and another Kabuki Mom! Great web site!
Dec 7, 2006 Reiter Hubert
www.covertex.com
Hi,::i am the father of Daniel. Daniel is 7 years old and is suffering on the Kabuki Make Up syndrom. We are interested in getting some contact to people who have the same disease.::Please contact us on my email adress.::Hubert
Jan 17, 2007 Jane Fraser
Our daughter Jessica (20 months) has just been diagnosed. Still getting used to the idea but we are very thankful that she does not suffer from any major health problems. Great website..wish there was something similar in the UK
Jan 23, 2007 Steffen,Bianca & Lara
http://www.kabuki-syndrom.homepage.t-online.de/
Hallo viele Grüße aus Deutschland::Euere Seite finde ich sehr Gut.::Ich werde unsere Seit demnächst auch in englisch einstellen. Ich wünsche Euch alles Gute bis bald::Steffen Bianca & Lara
Jan 30, 2007 Serena A Krywanczyk
Hi,I have a 12 yr old son with Kabuki.We live in northern New York State USA. I enjoyed your site! Would love to hear from anyone!!! Thanks for being here!!
Feb 7, 2007 Kate & John Wenzel
will comment later
Mar 10, 2007 tracy quinn
its great to see this site as my son has kabuki syndrome which was diagnosed back in 2003 would like to hear from other families
Mar 18, 2007 Colette
This site is great.. my son is undergoing testing to confirm this syndrome at age 3..
Mar 20, 2007 Trish Fallon
Congratulations and thank you for your wonderful website. As a worker at Self Help Queensland, a not for profit community organisation which links people into self help and support groups, I am pleased to be able to make referrals to the SAKKS website.
Mar 26, 2007 Chris
I have just visited your site and found some wonderful stories and people. I don't have a child with Kabuki syndrome but have a good friend with a daughter who does. I will recommend this site to her. God bless you all and your beautiful children too. Hugs Chris.
Apr 03, 2007 Mona Saleh
Hi there and congratulations on producing such a wonderful site. We also provide information about a variety of "rarer" genetic conditions and will certainly use this site as a referral point for anyone looking for info on Kabuki syndrome. Best of luck and warm wishes. Mona.
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