Zachary  
Supporting Aussie Kids with Kabuki Syndrome Inc.  
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WELCOME to SAKKS

Here are some useful links for information about Kabuki Syndrome.

The Kabuki Syndrome Network - a source and an index of information on Kabuki syndrome (KS) and a site to help families support each other by sharing their experiences. Margot Schmiedge was kind enough to add a link to SAKKS on the KSN site.

The French Kabuki Syndrome Association - a source of information on Kabuki syndrome for doctors, parents and families, especially those from Europe.

KS Downunder - This is a place where parents and family members can get together to discuss Kabuki Syndrome related topics.This group has been set up for anyone who lives in australia to come and talk about not only about the medical issues that come with this syndrome but to also write about the emotions we feel as parents when dealing with having a child with Kabuki Syndrome.

The Dutch KSN Site - Frans Faase was kind enough to link us from the Dutch Kabuki Syndrome Network page!

The Japanese KSN Site - Toshinobu Ozeki was kind enough to link us from the Japanese Kabuki Syndrome Network page!

UNSW Embryology - An educational resource for learning concepts in embryological development.

IDEAS Inc is a free information & referral service for people with disability, the aged, carers/family & supporters.

EDNA Education Network Australia (edna) is Australia’s leading online resource collection and collaborative network for the education and training community.

Better Health Channel The Better Health Channel (BHC) was established in May 1999 by the Victorian (Australia) Government. The information on the site aims to help improve the health and wellbeing of the Victorian community.

eNotes An article and downloadable PDF on Kabuki Syndrome.

All Abilities A directory of links to disability information.

 

 

 

 
 

 
 
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