Zachary  
Supporting Aussie Kids with Kabuki Syndrome Inc.  
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WELCOME to SAKKS

James' Story
- By James

Picture of JimmyIn December 1997 our family moved to Kingscliff NSW and after another move a year later, Mum, myself and my two sisters moved to Hervey Bay where I started school at the local special school. I had a few years trouble free until I had a heart operation in June 2002, I had to have my sternum wired back up.  About a year later the wires broke and I had to go back into surgery and have it done all over again!

In December 2005 I dislocated my left knee-cap outside Suncorp Metway Bank in Beaudesert. I was taken to the Beaudesert Hospital where they x-rayed my knee and then said I would be a bit sore for a few days.  But, two days later my knee dislocated again!  I went to see my doctor and she wrote me a referral for an appointment for the orthopaedic surgeon at the Logan Hospital.  While I was waiting for my appointment, GUESS WHAT HAPPENED?!  So I went to the Logan Hospital to the emergency department and after a few visits to a couple of doctors it was decided I needed a knee operation.

After my knee operation it was decided that I should take the rest of the school year off.  After I decided not to go back to school I had to find something to do so I started at St Mary’s. St Mary’s is a care provider for aged and disabled people; I had a carer and spent a few hours out and about doing all sorts of activities. Also I started at Beaucare Aged and Disability Services where I would go tenpin bowling on a Monday with a group and on a Thursday we set out on lots of fun trips. Eventually I also started a Wednesday group where we just socialised.

During this time I got a family support package I also got a post school package and this led me on my journey to TAFE

.Now I am 19 years old. I live with my dad Peter in a small country town of Beaudesert, just south of Brisbane QLD. I have been attending Metropolitan South Institute of TAFE for 12 months doing numeracy, literacy and also a computers course.  I like going to TAFE because I like the students and the teachers and also the chips and gravy that I buy from the canteen!

I would like to thank a few people who have helped me over the years, Prof Dorothy Radford, my Dad and all my good friends who have supported me.

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