A total of 14 families (48 people all together) attended this year’s retreat which was held in Sydney, with 8 interstate families travelling the many kilometres to be there.
It was so lovely to see all the kids, some of them for the first time. Our lovely Zoe gave all the kids a huge gift bag brimming with all sorts of treats for the kids. Parents received a surprise from SAKKS which included a relaxation theme with a personal massager and scented candles.
After a great night’s sleep and with a fresh and sunny morning we all gathered for breakfast before going to our own conference room to begin the activities. One room was decked out for the kids and our guest clown entertainer arrived, whilst in the other room Dr. Collins and fellows gave an informative presentation to 30 adults including 2 adults with KS.
Afterwards we enjoyed another meal together before we spent the afternoon chatting and watching the kids, this was followed by a disco. It was so good to see everyone dancing.
The weekend ended with Tai Chi on the Sunday morning after breakfast.

Group Photo



Privacy Policy


Donate to SAKKS

Thank You

Thank You

Entertainment Books

Buy your Entertainment book


A Dream come true for Jack

Click here to find out what happened...

Josh is a Superhero

Kabuki syndrome sufferer Josh Concilia shows the world he’s as tough as they come. Read the story here.

Sophie learns to ride

Horse rider Linda Gaffaney overcomes serious injury to teach at riding school for the disabled. Read the story here.

Ollie's Family & Friends to race

Three-year-old Ollie McKinnon has Kabuki syndrome and his family and friends will race in Herald Sun’s Run for the Kids. Read the story here.

Find us on Facebook

Search SAKKS

Login to SAKKS