The Kabuki Syndrome Network - Founded by Margot Schmiedge.

The Dutch KSN Site - Founded by Els and Jos Vergouwen, website supported by Frans Faase.

The Japanese KSN Site - Founded by Toshinobu Ozeki.

ASK (French site) - Our friends from France.

Privacy Policy


Donate to SAKKS

Thank You

Thank You

Entertainment Books

Buy your Entertainment book


A Dream come true for Jack

Click here to find out what happened...

Josh is a Superhero

Kabuki syndrome sufferer Josh Concilia shows the world he’s as tough as they come. Read the story here.

Sophie learns to ride

Horse rider Linda Gaffaney overcomes serious injury to teach at riding school for the disabled. Read the story here.

Ollie's Family & Friends to race

Three-year-old Ollie McKinnon has Kabuki syndrome and his family and friends will race in Herald Sun’s Run for the Kids. Read the story here.

Find us on Facebook

Search SAKKS

Login to SAKKS